Personal Webpages
These are websites or webpages of people with nemaline myopathy.
The Philip Bonvino Foundation
New York born and bred!
Lauren Cochrane
Ontario, Canada.
Melaina Cunningham,
lives in Missouri, USA.
Luke David, Australia. Luke
has another web at www.wheelchairboy63.piczo.com
Justin Lyndsay
Hills, New Zealand.
Joni Huopana lives in Finland. Website in English,
Finnish and Swedish.
Greg Labine, Canada. Greg also
has a Hip/Hop music web, and you
can hear his music on his MySpace.
Babsi Lackner. Babsi lives in Austria.
Her web is currently only in German.
Liliana Sue Loveland, Michigan, USA. Lili's dad keeps a blog regularly updated
with photos and stories of her progress.
David McDougall lives in Scotland, and is a wonderful
guy! David's holiday in Italy, 2005.
Ethan Myers
Keep up to date about Ethan's progress.
Drew Potenti lives in Boston, Massachusettes.
Schow family Keep up to date
on their latest news.
Christian
Smith's mum Monette, has created a diary to keep family and friends up to
date on Christians development.
Marty White New Yorker, Marty was first diagnosed with Benign Congenital Hypotonia, but more recently tested positive to nemaline myopathy. Read his story.