NM Foundation

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	www.nemalinefoundation.org	NMF Newsletter #1 Issue #1, Spring 2003
Founded: June 21st, 2001

Board of Directors
President and Treasurer		Monette Smith (USA)
Vice President		Albert Smith (USA)
Vice President		Monica McMulin (USA)
Vice President		David McDougall (Scotland)
Board Member		Mechelle Ross (USA)
Board Member		Kelly Fuerst (Canada)
Board Member		Marc Guillet (USA)
Board Member		Heather Williams (USA)

Why We Are Here		Donations
The NM Foundation was inaugurated as a "not-for-profit" charity on June 21st 2001. We aim to raise awareness and funds for more research into nemaline myopathy. It is also hoped that we will eventually be able to assist families in purchasing expensive equipment not covered by medical insurance companies. Special toys can greatly enhance a child’s development. While an electric wheelchair or adapted bike can greatly increase independence. Toys and adaptions are not usually covered by insurance because they are not considered requirements for health.		Donation checks/cheques should be made out to Nemaline Myopathy Foundation or NM Foundation and addressed to: The Treasurer: Nemaline Myopathy Foundation P.O. Box 5937 Round Rock TX 78683-5937 USA. The NM Foundation is recognized in the USA as tax exempt under section 501(c)(3) of the Internal Revenue Service code. Therefore, donations and contributions are tax deductible for tax payers in the United States of America.

Gene Reviews		How would you like your donation to be spent?
The Gene Reviews web site, a publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. A one-time registration process is required. On 25 June 2002, I received an email from Gene Reviews to inform me that they have added the Nemaline Myopathy Foundation as a resource to their article on nemaline myopathy. GeneReviews is an online publication of the University of Washington, funded by the National Institutes of Health (NIH), and is freely available on the GeneTests-GeneClinics website. GeneReviews entries are viewed about 2,000 times each day by more than 30,000 registered users.		NM Foundation raises funds for medical research into nemaline myopathy. If you would prefer your donation to go towards helping families or individuals with NM, then please consider the NM Support Group.